27 July 2017

Hi there, I am a neurologist and would like to make …

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Comment on JUST THE FAQ’S by Jess.

Hi there,

I am a neurologist and would like to make a suggestion for one of the answers to your FAQ’s.

First of all let me say that it sounds like you definitely had a rough time with your court-appointed attorneys and the medical/psychiatric system that really cost you, which must be very difficult. Thanks for writing this though as it’s creating something positive from a very negative, dehumanizing, and traumatic experience. So kudos to you for that!

I definitely agree that you do not have most of what you were diagnosed with, it does seem very excessive that you were misdiagnosed so many times. I just wanted to point out that PET scans are not used for psychiatric (or even most neurologic) diseases. When a patient is thought to have a psych illness, it is purely a clinical diagnosis, meaning that only the patient’s history and a psychiatric exam is enough in most cases to make the diagnosis. If the case is unclear, it is a good practice to obtain a brain MRI or other blood work only to rule out neurological disease, but this is not routinely done. A PET scan is almost never used with anything – it can identify early stages of cancer or other rare disorders – but we don’t use it to diagnose symptoms of psychiatric or neurologic illness.

Just wanted to point this out in case you want to use this to make the information here more accurate. Feel free not to, and obviously I’m speaking in a general sense and not specifically about your case (since I don’t know the details).

Thanks for sharing your experiences!

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